Years with ALS have left Kathryn paralyzed and needing 24-hour care. With her mind intact and having opted for mechanical breathing, she could live like this indefinitely. But the situation has embittered and alienated her husband Said, and proved too much for many nurses and aides.
The brutal effects of ALS—a degenerative disease endured by co-director Noah Arjoman’s own mother—are intimately chronicled in this bracing documentary, where humor emerges as a powerful coping mechanism. A moving celebration of motherhood and familial love that lends a vital agency to ALS patients.
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